Taking Care of John

             This line is in my soon-to-be-opened show Old Woman In The Basement:“So Joseph stopped going to meetings. He stayed home and I stayed with him and watched him disappear. I wiped up his pee, went after him when he wandered off, smiled when he twisted my arm too hard, and one day, it was too much. I drove him to SAFE HAVEN ALZHEIMER'S  UNIT and said, “Take him!”

            The decision to put a loved one in a dementia unit is heartbreaking. I cared for my husband John at home, watching him deteriorate,  for eight years. On the night of my 79^th birthday, my daughter took me out to dinner. The food was lovely so was the wine, but best of all was the conversation, not having to say, “ Do this,” and “ Don't do that.” John was in the night wandering stage.

His doctor prescribed a new pill guaranteed to  put him out for the evening. The sitter (It isn't easy to find one.) forgot the pill. At three in the morning, I hear a bumping. John is up, putting up shades, pulling them down, up...down, up...down. I follow him around saying, “Come to bed. It's late.We need some sleep. “ He turns and looks at me with half -mad eyes that have no recognition in them and I lose it.Banging my head on the wall, (yes! I really did.) I say, “I can't do this anymore.” In a couple of weeks, he was in a dementia unit and the guilt and grieving started.

            People said, “I'm sorry you had to put him in one of those places, but you do have to take care of yourself.” I'd smile, and nod. Inside I was screaming I want him back, but, of course, I wanted him the way he was.

            John was diagnosed early enough to try and teach me about our finances. I do not have a mathematical mind. The money sessions would end in me screaming and John confused so we'd eat or go for a walk. There was an oak tree on our road. When we came to it, John would stop look up and say, “How beautiful.” I'd say, “Come on.” One day,  I went back , stood beside him and looked up. It was beautiful and for that moment everything else was, too. 

             John was a neurologist so he knew all there was to know about Alzheimer's. He told my cousin Lew that it would be a lot harder on me than on him. I'm not so sure. There must have been moments when a symptom would manifest and he'd think, “ I'm getting worse.”He never told me what to expect. Probably afraid I'd go screaming down the road. When his speech went, he'd laugh and then weep when he saw me. He did that till he died two years ago.

            My children took me to see the sequioas and the redwoods this summer. A ranger who looked about twelve said, “The redwoods do not sink their roots deep. They twine them together so, in a way, they are holding each other up.” My grown children and my friends have been twining ever since. All of us who take care of those with Alzheimer's, or some physical infirmity have roots wound together.

When we tell our stories, we keep others and ourselves from toppling over.

I wrote this as guest writer for Judi Leavenworth's blog: Desperate Caregivers

Openings

I went with my two daughters and my thirteen year old granddaughter out to Hop'N Blueberry Farm
on Saturday. The owner, Mr. Burnette, raises hops for the local brewerys and  on beyond the vines of hops is a butterfly house, full of flowers, a misting waterfall and butterflies. One monarch lit on my granddaughter Molly's head and stayed and stayed and stayed.There were clouds in the sky over the Black Mountains close by. bluebirds and goldfinch flew with those chittering sounds. Beautiful. Before we left, my daughters, both teachers, bought twigs bearing the celadon green Monarch chrysalis that look like jewelry. My oldest daughters chrysalis hatched the next day and is gone on to where he was going.
I feel like that chrysalis as the days count down to our opening. The word "opening" takes on new meaning.

Off Script

In writing the script for Old Woman, some stories were scratched because of length or lack of relevance..Like this one which as far as I know is true. My good friend Virginia from the Eastern Shore passed it onto me. it's the kind of tale that spreads around a small town like wildfire starting always with " Did you hear...? " ( the names have been changed)
    May Frances Parker and G.T. Shreves were the most talented drinkers in town.They attended all the parties where liquor was served and were the last to leave. One night, they managed to out stay the liquor as well as the other guests. They made it to G.T's car. He was the designated driver that night. He made it to May Frances' house, traveling down the back roads. He drove into her drive
but May Frances was out. She  would not wake up so he drove on to his house, and leaving her in the car, staggered inside and fell into bed.
     The next morning he was on his second cup of coffee when he remembered... May Frances! He ran to the car Where he found her not only passed out, but passed on. G.T. jumps in the car and drives to Waddell's Funeral Home where Tim Waddell says, "I can't take her, G.T. You have to have a certificate from the coroner saying she's dead,"  to which G.T. replied, "Any fool with one good eye and half a brain can see she's dead!Tim said he didn't care he had to have that certificate so G.T left to go into town and look for the coroner with May Frances riding beside him looking no worse than she had at the party.
      Sam White,  the coroner, had gone to Norfolk , but no one knew  that. G.T rode all over town with May Frances beside him and couldn't find him. When noon came, G.T felt the need for a little libation, liquid of course, and stopped at the restaurant, leaving May Frances, of course, in the car.
Claudine Parks walked past the car on her way to the cleaners, saw May Frances and stopped to talk about Garden Club business. Afterwards, she said, "I could have sworn she said something. I know she nodded her head."G.T. came out of the restaurant and took off looking for Sam having no clue of the May Frances' conversation.
    Sam came home and heard of G.T.s dire need of him. So he took off looking for G.T.  but could not find him. So the whole town divided up into posses.Cars on all the streets even down in the necks in the fishing villages. Finally,  someone remembered G.T's habits. They found him down at the wharf , beer bottle held high extolling the sunset  May Frances beside him enjoying it to, in her quiet way.

We have a campaign to seek support for our expenses as we move towards the full production of our play at BC Stage in November. You can help! Go to this link on Kickstarter.com to see our project: http://www.kickstarter.com/projects/1028781595/get-old-woman-in-the-basement-on-the-stage 
   

    

Battery Park Roof Garden

On the morning of September the 24^th, Steve Boyer came here to take the “Basement Steps” of the play apart, take them to the to the top floor of the Battery Park and re-assemble them. I went down town around ten and sat at table with David Novak and Steve while they finished their blueberry muffins and coffee.We tried the microphone because the room's ceiling is high making sound hooty. Then Steve put the sides on the steps. I walk to the top, David the director, listens. An African-American man comes in to sweep, says his name is Charles. Says he was a bell captain, “in the olden days.”I tell him of listening to hundreds of children singing in that room, auditioning for Johnny Haber's Tanglewood Children'sTheatre, wanting to be mice in Cinderella or munchkins in Wizard of Oz.We sigh for the olden days.

Out on the roof, an elderly man named Fred tells me he's lived two lives. “The first about mind and body. This one is about soul.”

That night, the room fills up, maybe fifty people. The western sun is seen behind tall curtains Steve put up to keep the light out of my eyes.Steve wanted a story. I tell a mountain tale about Old One Eye .Vera, one of the residents in this residence for the elderly,grins. She's lived in Asheville all her life.

Lightheaded from the laughter following the story, I introduce David who introduces me and sets the stage for the first scene. I walk up the steps. The ceiling is way up there. Not close to my head like in my basement. I think, “What am I doing here? I'm afraid of heights.” Turn and lose the words for a second that feels like an hour.The scene ends with Mariah, reading, “There was an old woman who went up in a basket nineteen times as high as the moon.” Applause. I tell of a trip out to California to see the redwoods. “Their roots don't go deep. They intertwine. So those trees taller than any others end up holding each other up.”So ended the first presentation.

We have a campaign to seek support for our expenses as we move towards the full production of our play at BC Stage in November. You can help! Go to this link on Kickstarter.com to see our project: http://www.kickstarter.com/projects/1028781595/get-old-woman-in-the-basement-on-the-stage